There are many resources available for information that might be more specific (or not) to your needs at any time during your survivorship. Here are some we think may be helpful.
Ovarian Cancer-Specific Sites
The Ovarian Cancer Research Alliance (OCRA): In 2016, the Ovarian Cancer Research Fund and the Ovarian Cancer National Alliance merged to form one organization. They fund private research, advocate for increased federal research/awareness funding and furthers national policies that give women access to the services they need. Through Community Partners, such as NormaLeah, more individualized support is available for women and families before, during and after a diagnosis.
800.343.5540
www.ocrahope.org
National Ovarian Cancer Coalition (NOCC): NOCC’s mission is to raise awareness about ovarian cancer and to promote early detection and education about the disease. Their focus is on improving the survival rate and quality of life for women and families living with the disease. They sponsor educational forums and seminars and offer a toll-free helpline.
888.682.7426
www.ovarian.org
Roswell Park Familial Ovarian Cancer Registry: This is primarily a registry that tracks families with a history of ovarian cancer. They offer a hotline, education, information, and peer support for women at high risk of the disease. Their focus is on research to identify new genes associated with familial ovarian cancer.
800.682.7426
www.ovariancancer.com
National Ovarian Cancer Association: This Canadian association is dedicated to overcoming ovarian cancer, supporting women diagnosed with the disease, building awareness within both the public and healthcare industry, and funding research.
877.413.7970
www.ovariancanada.org
Ovacome: This support network in the United Kingdom provides information and support for everyone affected by ovarian cancer, offers a blog about the disease and has developed the BEAT campaign to help women recognize the signs and symptoms of ovarian cancer.
(+44) 207.407.0109
https://www.ovacome.org.uk
Gynecologic Cancer Sites
Foundation for Women’s Cancer: Formerly called the Gynecologic Cancer Foundation and the Women’s Cancer Network, this organization was established by the Society of Gynecologic Oncologists. They support ovarian cancer research, train laboratory research specialists and host a variety of programs for patient education and awareness of gynecologic cancers. Their interactive website offers medical information, treatment options, and experimental therapeutic programs.
800.444.4441
www.foundationforwomenscancer.org
SHARE: Self-help for Women with Breast or Ovarian Cancer: This not-for-profit organization provides informational hotlines for breast and ovarian cancer. The group also offers peer-led support groups, wellness education, and advocacy programs.
866.891.2392
212.719.1204 (hotline)
www.sharecancersupport.org
Johanna’s Law: In 2007, Congress passed the Gynecologic Cancer Education and Awareness Act known as Johanna’s Law (named for Johanna Silver Gordon). It is designed to promote early detection of all gynecologic cancers through their Inside Knowledge initiative and is administered by the Centers for Disease Control and Prevention.
800.232.4636
TTY: 888.232.6348
Johanna’s Law
Look Good…Feel Better: This is a free national public service program sponsored by the American Cancer Society and the cosmetics industry that teaches female cancer patients helpful beauty techniques during and after chemotherapy and radiation treatments.
800.395.5665
www.lookgoodfeelbetter.org
US Public Health Service’s Office of Women’s Health (OWH): This governmental agency provides national leadership in advancing women’s health issues through the coordination of research and training across the various agencies within the Department of Health and Human Services. They operate the National Women’s Health Information Center (NWHIC) which provides information on more than 800 topics related to women’s health.
800.994.9662
TDD: 888.220.5446
www.womenshealth.gov
Support Connection: This non-profit organization’s mission is to provide emotional, social, and educational support services to women, their families and friends affected by breast and ovarian cancer.
800.532.4290
www.supportconnection.org
FORCE: Facing Our Risk of Cancer Empowered (FORCE) is devoted to Hereditary Breast and Ovarian Cancer (HBOC) syndrome. Their mission includes support, education, advocacy, awareness, and research specific to hereditary breast and ovarian cancer. Their programs serve anyone with a BRCA mutation or a family history of cancer.
866.288.7475
www.facingourrisk.org
General Cancer Resource Sites
The National Cancer Institute: A resource administered by the federal government offering a Cancer Information Service which includes a national information & education network.
800.422.6237
www.cancer.gov
American Cancer Society: A national organization with community-based chapters dedicated to eliminating all types of cancer as a major health problem.
800.227.2345
www.cancer.org
The Wellness Community: This is the largest network of free psychological and social support for people with cancer. Through professionally-led support groups, education, and social networking, they focus on enhancing health, stress management, and well-being.
888.793-9355
www.thewellnesscommunity.org
Cancer Care, Inc.: This nationwide agency provides information, emotional support, referral, and practical assistance to people with cancer and their loved ones.
800.813.4673
www.cancercare.org
Cancer Group Institute: Through their website, CancerGroup.com, they are an online resource center for cancer patients, their families, and caregivers. They are dedicated to delivering accurate, meaningful, personalized information to help people with cancer make informed treatment decisions for an optimal outcome.
Medicine Net, Inc. This is an online, healthcare media publishing company owned and operated by WebMd. It provides easy-to-read, in-depth, authoritative medical information for consumers via its robust, user-friendly, interactive website. Their section on ovarian cancer is particularly detailed and easily understood.
- 624.3700
www.medicinenet.com
If any of these links appear broken, or if you know of another resource that should appear on this page, please let us know by emailing us at normaleah@normaleah.org.
